HDSA First Inland Empire Team Hope Walk — November 9
FOR IMMEDIATE RELEASE
Contact: Daniel Medina
Hundreds to walk for Huntington’s Disease In HDSA first Inland Empire Team Hope Walk November 9
Funds raised will help support Huntington’s Disease Society of America’s fight to improve the lives of people affected by Huntington’s disease and their families.
RIVERSIDE, CA – August 16, 2013 – The Huntington’s Disease Society of America’s Pacific Southwest Region will host the 1st HDSA Inland Empire Team Hope Walk for Huntington’s Disease on Saturday, November 9, 2013 at Fairmount Park in Riverside, Ca.
Registration begins at 8 a.m., and the walk starts at 9 a.m.
The HDSA will walk in memory of young Sebastian Hernandez who lost his battle to HD in 2012.
Participants will enjoy a 1.5 mile walk around the Fairmount Park lake area (route to be determined), entertainment, face painting, food, prizes, an auction and raffle. The Disease Society of America (HDSA) has set a goal raise $16,000 to help improve the lives of those affected by Huntington’s Disease.
Families, friends, corporate teams, runners, walkers, researchers and health advocates are all encouraged to participate.
There are many ways to support the cause: sign up as a participant, sponsor a participant or join in as a volunteer or spectator. To register online, visit the website by clicking here (www.hdsa.org/thwie) or contact Daniel Medina for additional information at (951) 505-1280 firstname.lastname@example.org.
The Huntington’s Disease Society of America is the largest 501(c)(3) nonprofit, volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease.
Huntington’s disease is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure and only one FDA-approved treatment for a symptom of the disease. Huntington’s disease slowly diminishes the affected individual’s ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10- to 25-year period. Eventually, a person with this disease becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with Huntington’s disease. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing its deadly progression.
HDSA founded the HDSA Coalition for the Cure, a collaboration of 16 international researchers, as part of the HD Drug Research Pipeline, and supports research which develops potential therapies to treat and eventually cure HD; and HDSA also supports 21 Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling. The Society is comprised of 46 local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 170 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington’s disease for medical professionals and the general public.
To learn more about Huntington’s disease and to get involved in HDSA, please visit www.hdsa.org or call 1-800-345-HDSA.